NTR 'patient-reported outcome'

[dillerm]

Label: patient-reported outcome

Definition: A data item that is about a report by a patient concerning a healthcare intervention. A patient reported outcome can include subjective feelings regarding symptoms, functions in daily life, physical, mental, emotional, spiritual, and social well-being, and satisfaction with healthcare that has been received.

Contributors: https://orcid.org/0000-0001-9625-1899, https://orcid.org/0000-0001-9990-8331, https://orcid.org/0009-0003-7246-1252

[dillerm]

@wdduncan could we simplify this to be "A healthcare outcome that is reported by a patient" (keeping the second sentence)?

[wdduncan]

Suggestions to definitions from OHD meeting:

• A data item that is about a patient’s health that comes directly from the patient. A patient reported outcome can include subjective feelings regarding symptoms, functions in daily life, physical, mental, emotional, spiritual, and social well-being, and satisfaction with healthcare that has been received.

• Add https://www.cancer.gov/publications/dictionaries/cancer-terms/def/patient-reported-outcome as definition source.

• Add skos:exactMatch http://purl.obolibrary.org/obo/NCIT_C95401

• Add has_broad_synonym PRO (this an often used abbreviation)

[dillerm]

This all looks good! Should we mention in a comment or in the definition that a healthcare intervention need not be what the outcome is referring to?

[wdduncan]

Yes. I think that would be a helpful comment.

cc @addiehl

[dillerm]

We aren't currently importing any of SKOS in OGMS. To map to other resources, we can import it and use the proposed mapping relation or just use hasDbXref, which we have imported in OGMS.